For so long I shied away from sharing my story.
I told myself I couldn't find the words. I told myself nobody would relate. And I told myself my story had already been written by others. I'd visit the More Than Lyme blog and read other people's stories and felt bolstered by the shared experience, and at the same time left out on the fringes as if the community was closed to me. As an introvert who is also terribly shy, I didn't know how to connect, to reach out. I became fearful of trying after becoming so isolated from the world around me, as friends stopped relating to the pain I was in, as they defined me by the disease, I started to define myself in the same way - by my lack, by the pain and isolation, by the trauma. I love reading everyone else's stories, and still feel that mine is somehow invalidated - that I always have words until it comes to this chapter - the lyme chapter. I stand in frozen terror. I want to take my power back, to take my story back, to connect, to change the narrative.Read More