Posts tagged stories told
The Burden That Blooms: Heart-led Thoughts From the Partner of Someone With Lyme Disease

This isn’t a stance we normally take. This isn’t a perspective that that I’m used to standing in. This isn’t the road I normally walk down when going to share with you a new voice. This isn’t what I’m used to and I’m quite certain it’s exactly what’s needed.

When things aren’t going well, I get caught up in my own thoughts. I retreat. I try and piece together “next steps” that seem somewhat logical and straightforward, only to be adjusted time and time again. Illness, it’s a funny thing, and sometime a selfish thing, as I don’t often think about what those around me must be feeling. Of how they are needing to process. Are they wanting to retreat? Are they also terrified? How are they going to deal with this? How are they going to get through this, too?

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Finding Your Inner Stubbornness: Why Becca Has Decided She Will Never Give Up on Herself, & Why You Shouldn’t Either

Often times our preconceived ideas come from a place of not-knowing. Of believing we’re in the right without taking the time to sit on the other side of things. To shift over just enough to see that maybe, maybe, things aren’t as they seem. People, situations, conversations, and places aren’t as they seem. That though we can claim we would have done something differently from someone else, we will never know as we are not them and they are not us.

The best thing we can do when making room for stories to be shared, is to listen. To simply listen, only responding when we are sure there is a gentle-ness surrounding our words and voice, hoping that in return, they will do the same as we share our experiences.

It really is a beautiful thing, story telling. It’s an opportunity to gain insight into a world very unlike our own. To join movements that we otherwise wouldn’t. To believe in something and advocate for it when before, it might not have even been on our radar.

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A Few Words, by Annie Perkins: A Poetical Synopsis Through Losing One's Self to Chronic Illness & Why It Took Letting Go Believe in the Possibility of Healing

A few words,

Self, learn, honesty, trust, fear release, and possible.

Those seem to sum it. This journey has taken time. It has taken strength. It has taken following my intuition when things seems too daunting, too foggy, too confusing.

It had me take many long walks through the dark. I knew no matter how hard some times were, anything was better than going backwards. So I pushed, some days when I shouldn’t have, for five years now. The old phrase “If I knew then what I know now” echos through my mind. My life is so different now. Not only am I seeing progress, I am also beginning to become one version of myself, not many. I am becoming the me that lay hidden in the background for so many years, that I thought I left her.

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Tori Ashdown

Six years ago, I was thriving. I was young, adventurous, and living life to it’s fullest. Spending countless hours at the dance studio doing what I love, going to high school and making new friends, excelling in academics, and receiving straight A’s; I was living a normal life. However, over night, I found myself to be barely surviving. December 6th 2010 I woke up in the most severe pain of my life. I couldn’t lift my head off my pillow, I couldn’t move. It was agony. My head hurt so bad I actually thought I was going to die. Three and a half months later, I was diagnosed with Chronic Lyme Disease. I was happy to finally know what was wrong with me. What I did not know, is that the happy fifteen-year-old girl with a diagnosis would still be suffering at 21. 

I did not know I would have a never-ending list of debilitating symptoms and medication, and I did not know I would be strong enough to be writing this, sharing my story. 
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On Being Ok with Where We are Right Now: A Story By, Mikayla Vacher

This is, Mikayla,

Headstrong, courageous, empathetic, determined, loving, and optimistic, all while in the face of pain. In the face of obstacles so big they could crush you at a moments notice. With her unwavering hope and will to make this life, her life, an adventurous one, Mikayla encourages us to see all that we have (the people, places, and things...) as enough.

As more than enough. As every reason to keep pushing forward, even when the world around you does not seem to be working in your favor. Even when you find yourself trudging through the deep waters of anxiety and depression, desperately trying to make sense of the slew of symptoms coming at you from all directions, Mikayla helps us to see that this illness, so often seen as our weakness, can instead give us the strength that we need to create a life more than. 

To take all that we already are, and put it towards a life we fall in love with over and over again.

This is her story...

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The Beauty In It All: A Story By Nicole Nakamura

Man, I did this "my story" thing for YouTube once upon a time, and I recently re-watched it to see how far I've come; I was living in Hawaii at the time, (my dream). And surfing as much as I could. Until the Lyme took a turn for the worse and I couldn't surf let alone carry my board down to the car. I slept through life and classes and couldn't work.

I was done, and I was sure I didn't want to fight anymore. Just like that. It all went away and I wanted to go away.

I didn't want to deal because I didn't think I could. Yet I came home for a semester to treat under close supervision, and I finally "gave in." I'd like to say I surrendered rather than gave up. I let myself heal. Gave permission. It was quite the thing you know. I didn't know that's what I was doing differently at the time...but it is; I finally allowed myself to not be a sick person, but to let myself be a healing person growing into my strengths.

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