Posts tagged lyme story
The Privilege In Knowing That I Was Sick: Discovering Beauty While Fighting Lyme Disease

The Beginning

When I was four my parents made the decision to leave their home country of Colombia and move to Raleigh, North Carolina. It wasn’t until many years later that I began to realize what a huge sacrifice that was. My parents left all that they knew for my brother and I to have the opportunity to do whatever we wanted with our lives. My mother showered us with unconditional support and motivated us to live whatever lives we wanted to live. This meant she worked from the bottom up, dawn to dusk, this meant coming to a country that we were undocumented in for some time. This decision, while terrifying for her, meant that I would get to travel, to question what I want to do. It meant that I was to have privilege.

When I got sick with lyme I began to question and resent the why. Why was I given this battle, why my family, haven’t we been through enough? What about all the other people who don’t have the resources to treat this disease? All those questions looming over me were the most difficult to process, and I’ve realized that part of my 'why' came from the selfishness that nobody wants to be the one with a chronic disease or any disease, and the denial...

Read More
No Matter the Odds: Kaitlin Child's Choice To Live a Life More Than Lyme

Meet Kaitlin.

A determined, resilient, hard working, brave, courageous, and honest woman, who has taken the obstacles that this disease as placed in front of her, and turned them into every reason to live her life to the fullest. 

At thirteen years old, Kaitlin's life was packed full of hospital visits, unanswered questions, and a diagnoses that changed everything; Late Stage Lyme Disease was about the only answer she was given to her seemingly never ending list of questions, and it was an answer that would continue to haunt her for the years that followed, limiting her to a life that was so far from the one she wanted. A life that was scattered with fear, doubt, and an overwhelming sense that this thing, this thing was never going to go away.

This is her story...

Read More
Sense Of Self

Lyme disease can be very insidious, sneaking its way into places, thoughts, and memories where it shouldn’t be, making it a daily struggle to find the line between your sense of self and your illness. Sometimes I look back at moments from my life and I cant help but question `whether or not Lyme played a role in them. I question if my identity evolved and grew organically, or if those changes can be attributed to a bacteria existing outside of my control effecting my moods, personality, and health. At this point in my life it’s hard for me to actually remember what it felt like to be healthy, but I can picture it. I see snapshots of myself full of action, moving through life with an electricity I can’t quite grasp anymore.

I see a little girl swinging from trees, a slightly older version dancing ballet or riding horses, I see myself at 13, a girl full of ideas, just starting to glimpse the real world. As clearly as I can picture these images of health, I still can’t feel that feeling. It’s taken me a long time to come to terms with that, and to be able to forgive myself, and my body for not being able to feel it...

Read More
A Story, Featuring Emily Nichols

1. (Feelings Evolved) Describe how you saw yourself before being diagnosed with Lyme, during the process, and after living with the disease for awhile (present day). Have the feelings towards yourself changed over time? If so, how?

Emily: Maybe it’s the Lyme brain fog, or just how the passage of time affects memory, but it’s hard for me to remember exactly how I saw myself before Lyme, as if the person I am now and the person I was then are different. When I was first diagnosed with Lyme, I remember it felt surreal. I was relieved to finally have a diagnosis and I felt greatly impacted, but strangely detached, by hearing that I had this hard-to-treat disease. I could see the weight that this disease had, and all the implications that came with it, but I couldn’t feel it yet. I was too focused on NOT letting Lyme become my identity that I overcompensated. While under treatment, I stayed in college as a full time student, I kept my job, and I left to spend a full year in Germany through a study abroad program. It’s hard for me to determine if my feelings towards myself changed over time, because I feel like the same person, just with different experiences that have affected how I make my choices.

Read More