Posts tagged lyme disease
The Scars Make the Lakes and Mountains: A Story and Poem By Author Andrea Sheldon

For so long I shied away from sharing my story.

I told myself I couldn't find the words. I told myself nobody would relate. And I told myself my story had already been written by others. I'd visit the More Than Lyme blog and read other people's stories and felt bolstered by the shared experience, and at the same time left out on the fringes as if the community was closed to me. As an introvert who is also terribly shy, I didn't know how to connect, to reach out. I became fearful of trying after becoming so isolated from the world around me, as friends stopped relating to the pain I was in, as they defined me by the disease, I started to define myself in the same way - by my lack, by the pain and isolation, by the trauma. I love reading everyone else's stories, and still feel that mine is somehow invalidated - that I always have words until it comes to this chapter - the lyme chapter. I stand in frozen terror. I want to take my power back, to take my story back, to connect, to change the narrative.

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This Is What Lyme Looks Like: On Being Your Own Best Advocate, Why Compassion Is Essential to Healing, and How Thriving Is Possible When Facing a Chronic Illness

You may look at me and assume I am healthy. And to be honest, so did most friends, family members and doctors. But, the truth is, this is what Lyme Disease looks like.

On the inside there is pain, nausea, fatigue, exhaustion, anxiety, heart palpitations, numbness, muscle cramping, headaches, and disease. On the outside there is the strength of a woman trying to fight through each day without anyone seeing the struggle.

Lyme disease is something that, in my opinion, the medical field does not discuss enough. It is something that far too many people are fighting without a diagnosis. We are misdiagnosed time and time again and why? 

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I Did It Anyway: Maddy's Story On Finding Her Adventure + Redefining What It Means to be Determined in Her Pursuit of Happiness + Fight Against Lyme Disease

I grew up with a love of the outdoors, playing in the ravine next to my house that ran down to Lake Michigan with my twin brother. I frolicked in my local neighborhood parks, rode bikes from dusk to dawn without a care in the world. I ran track and cross country and fell in love with graphic design, film photography and philosophy in high school. I also found a deep passion for music - something I’d realize later on is one of the few things Lyme cannot take away from me as well as something that brings me peace, joy and hope.

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Victoria Starr

Meet Victoria,

A creator, cook, motivator, wellness blogger, adventure advocate, loyal friend, and Lyme Activist. Victoria makes a point of surrounding herself with the people, places, things, and food that will not only nurture her, but push her to live a life beyond the limitations that Lyme Disease brings, all while encouraging others to do the same. 

In her own words...

"The longer I have lived with the diagnosis, the more I work to break out of that shell and force myself to continue to do the things that I love, even if it means that I might wear myself out. I listen to my body, but I continue to challenge it!" 

This is her story...

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Megan's Two Year "Lyme-iversary"

Two Year "Lyme-iversary"

Written By: Megan (Salo) Breimeier

Today is April 15, 2016 and it is my 2 year “Lyme-iversary.” When I think of the word anniversary, I automatically think of a celebration, a great milestone, an exciting day, but today is just a typical day of the life I’ve been living for the past 2 years. I was diagnosed with Lyme disease on April 15, 2014, after almost 1 year of being passed around from doctor to doctor and enduring countless tests. Despite significant brain fog, I remember the moment clearly. I was driving home from work on a sunny day with the sun roof open. I had reduced to working part time due to a rapid decline in my health. I probably wasn’t safe to drive at the time, nor should I have been checking my phone. I remember seeing a message from my new doctor in Seattle. My heart started beating faster. This was it, the moment I was waiting for, my last resort, my last strand of hope. As I listened to the message, a smile came across my face when I heard that I tested positive for Lyme disease. I finally had an answer, I wasn’t crazy, and my persistence in finding out what was wrong with me had paid off. I could now tell people that I had a diagnosis, it will all make sense, and they will understand.

Little did I know what was in store for me. I quickly learned that this was going to be a very long battle and that Lyme disease comes with an endless list of symptoms, judgment, controversy, and a mountain of insecurities...

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