Posts tagged livingwithlyme
How Hitting Rock Bottom Change Lisanne's Life Forever + how She then Decided to Move Forward in Her Fight with Lyme

Written and carefully crafted, with an understanding that the words from her heart are worth sharing as they might fill another with reason or hope as to why this journey is worth fighting. As to why, sometimes, it takes hitting rock bottom to recognize the beauty in the every day, the love from family, the support of friends, the place you live, and the very real emotions and pain that you feel. 

It takes a courageous heart, a strong heart, and a vulnerable heart, to recognize when the truth that we're looking for already exists within us. That our ideas, turned creative endeavors, turned passions, turned the way in which we express who we are, don't come easy, and in order to keep them alive, we must work our very hardest. We must give it everything we've got to move past the pain, past the shaking hands, the blurry vision, and the ever-nauseating feeling in the pit of our stomach. 

We may fall, but when we do, we will always, always get back up. Lisanne brings this to light in this lovingly written piece, where she shares her lowest of lows, most treasured memories, and exactly what it takes to keep her mind alive with the hopes and dreams that drive her to create magic. 

This is her story...

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Adventures From The Trail

This is, Kristen, known to many as, Rainbow Dash (her trail name).

A little bit about her and her "home"...

I get my mail in a small town in rural Kentucky. I've been told that "my people" are in Asheville, NC, or the Pacific Northwest, but I've yet to live in either of those locales. I'm a bit of a nomad; I had five address in eight months in 2013. But, hey, "not all those who wander are lost," right? I turned 26 on trail this year; I celebrated with a road walk detour because the PCT had a fire closure. I was bitten by the tick that gave me Lyme four days after I turned 22. It was two years before I became noticeably (and severely) ill and nearly another year before I was diagnosed.

Where did your passion of hiking derive from. Was it recent, or does the itch go way back?

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Hannah Sieff

Q: Letting go. In the process of being diagnosed with Lyme Disease, what things have you had to sacrifice and let go of? And how do you cope and adjust to this new way of life?

Hannah: Having a chronic disease means leading a double life. I have my “normal” life, filled with going out with friends, running to class, and indulging in pizza. Then I have my “Lyme life,” which consists of juggling dozens of doctor appointments, scrambling to refill prescriptions, and spending hours in bed. Yet leading both of these lives is impossible. Something has to give. I had to compromise my academic career – something that has been a primary focus in my life for years. Succeeding in school is what drives me; I always want to learn more and do better in the process. My high expectations for myself have been shattered since being diagnosed with Lyme disease.

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Aly Shwedo

Q: Letting go. In the process of being diagnosed with Lyme Disease, what things have you had to sacrifice and let go of? And how do you cope and adjust to this new way of life?

Aly: My life now compared to my life two years ago barely resemble each other. I’ve had to give up pursuing my education, my job, my friends, my independence, and almost my entire way of living through this disease. I am still grieving the loss of my former life, but I think sacrifice is a much better word to use when it comes to chronic illness. Lyme disease strips you down to your core. It is easy to look at our situation as a negative experience, but I have been given more than I have sacrificed to this illness. I have gained compassion and respect for anyone affected by chronic illness and hardship. I have been shown what moments in life truly matter and have a greater appreciation for every opportunity that my health allows me to do something “normal”.

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Alicia Katy

Q: On a day all to yourself--what is your favorite way to wake up?

Alicia: Slowly! I love taking my time in the mornin'. sippin' on my favorite organic coconut coffee from hawaii is always an added bonus to my day :)

Q: What are your favorite snacks/food items to bring along on a solo adventure? Or do you stop at a favorite place before to pick up a smoothie or lunch to go?

Alicia: Suja juice! The '12 essentials' is amazing! Also some trail mix. No pun intended :)

Q: What kind of places intrigue you/motivate you. That inspire you to adventure. Somewhere you'd want to hang out at for an afternoon. (Maybe pick a places or a couple places around your home that you love to explore or just visit frequently.)

Alicia: The beach! Whether it's exploring/hiking the coast, free diving/playing in the water, seashell hunting, or watching the sunrise or sunset next to the tide. Anything and every thing turquoise and salty inspires me. It's all therapy for my soul.

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