Posts tagged goodhealth
Alexandra Noll

Lyme Disease was honestly just a name for the myriad of problems I had been dealing with since early adolescence. Chronic illness was nothing new; I watched my grandmother slowly slip away from a combination of medical mysteries that included Crohn’s Disease, ankylosing spondylitis, and many others. As a kid, I battled constant headaches and seasonal allergies that worsened after my family moved from Massachusetts to Texas.

I remember having a lot of growing pains and being tired. I never wanted to run around like the other children my age. In 2010, my headaches worsened. My best friend recommended that I try a gluten-free diet, which miraculously cured the problem. I always managed to pick up weird things, like a staph infection on my face after a week of backpacking.

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Laura Ehlers

I was diagnosed with Lyme Disease in early 2013, after ten years of searching for an answer to my chronic migraines which turned into chemical sensitivities, mold sensitivities and neurological symptoms. My health became drastically worse about one month after I married my husband, when I moved into his home- a brand new starter house. You may not be aware that new building materials are highly toxic and give off chemicals such as formaldehyde in the form of a gas. Some people with strong bodies have no noticeable problems with this, but I was not one of those people. My body was so damaged from the Lyme Disease I did not yet know I had, that the chemical off gassing triggered downward spiral. We barely had a newlywed stage and jumped right into "in sickness and in health". The saddest part of this experience for me has been fighting for better health instead of being able to immerse myself into my marriage right away. I'm not able to work full time, because the stress of being mentally "on" for forty hours a week is too much for my adrenals to handle.

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Keri Fisher

Question: Letting go. In the process of being diagnosed with Lyme Disease, what things have you had to sacrifice and let go of? And how do you cope and adjust to this new way of life?

Keri: Letting go is very hard, especially because I really loved my extremely active and on-the-go life, and I miss it. By the age of 26 I had traveled to over 20 countries, lived abroad twice, and earned two college degrees. I find myself saying “before I got sick I did this...” “when I was healthy I was very...” so that type of language and thought implies that I can’t be myself or be who I am because of my symptoms and how this disease has plagued my brain. Besides the stress and pain of being sick, we are sick with bacterias that our government denies and doesn’t even know how to test for or treat! Now that I am out of my brain fog and have my short-term memory back, I adjust and cope by practicing non-attachment from yoga, realize that every moment, emotion, and body ache is fleeting, and I tell myself and my body how much I love them.

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Adrienne Joy Clements

But my favorite self-love coping tools include: mindfulness + meditation practices, journaling exercises, spending time outdoors, playing with my awesome pup, and connecting with others who understand (Instagram is a great way to do this!).

Question: Following your passion. What activities do you do for yourself that help feed your mind and body? And how do these activities help you stay motivated through the good and the bad?

Adrienne: I like to consider myself a Jackie-of-all-trades, and have so many different passions. I enjoy learning, creating, connecting, traveling, and playing! Spending time outdoors nourishes me on so many levels – physically, mentally, and spiritually. Even if all I can do is sit out in my backyard – the sun, sounds, and earth are so healing.

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Aly Shwedo

Q: Letting go. In the process of being diagnosed with Lyme Disease, what things have you had to sacrifice and let go of? And how do you cope and adjust to this new way of life?

Aly: My life now compared to my life two years ago barely resemble each other. I’ve had to give up pursuing my education, my job, my friends, my independence, and almost my entire way of living through this disease. I am still grieving the loss of my former life, but I think sacrifice is a much better word to use when it comes to chronic illness. Lyme disease strips you down to your core. It is easy to look at our situation as a negative experience, but I have been given more than I have sacrificed to this illness. I have gained compassion and respect for anyone affected by chronic illness and hardship. I have been shown what moments in life truly matter and have a greater appreciation for every opportunity that my health allows me to do something “normal”.

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Katelin Kuykendall

My diagnosis came just as I was beginning to follow my dream of being a musician. I had worked so hard to make this dream a reality just in time for Lyme Disease to take it away. This illness chooses to affect my joints primarily, followed by cognitive functions. Due to this, I am no longer capable of being a percussionist. It took three (if not four) years to really grasp the reality of losing my music and appreciate the talents of others. I would break down at the simplest triggers, unable to mourn the loss of this passion. It was hard, ugly, and long, but I overcame. While this was a devastating and life altering realization, so many wonderful things have come from this new path. I’ve learned to appreciate what I had and look forward to what the future will bring. I transferred schools to have a fresh start and learned so much more about myself and my identity.

 

Adjusting to a new way of life - especially one of difficulty - can seem daunting. Just when you think everything is routine and under control, a new symptom sneaks its way in. Because of this, I’ve learned to take it as it comes; one day at a time, one appointment at a time, one feeling at a time. Looking too far ahead with treatments and tasks can be overwhelming, so it’s important to keep the right perspective.

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