Posts tagged More Than Lyme
Rise and Thrive: A Story of Lyme Disease, Dance, the Negative Side of the Word “Heal,” and Why Hannah Has Never Thought of Herself As Broken & Needing to Be Fixed

Sometimes a diagnosis can feel like a death sentence.

Whether your particular sentence is an injury, illness, or mental health condition, it can feel as though the walls are closing in. It’s as if there’s no escape and no way back to the life you once lived. At least this is how I felt when I was diagnosed with not just Lyme disease, but also heavy metal poisoning, mold toxicity, and a garden variety of parasites.

I was 32, with a three-year-old son, assorted jobs, and a life that simply didn’t accommodate chronic illness. I was devastated. I shook with fear, with disbelief, with denial. Now I refer to myself as the luckiest Lyme patient alive...

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Why Sylvie Believes Creativity Means Choosing Curiosity Above Habit: On Being Fluid, Vulnerable, and Raw in Her Art + Fight Against Lyme Disease

It's 9pm on a Thursday and I am swaying and clapping and doing the chicken dance with a group of strangers. My awkwardness is melting, a smile pulling at the side of my mouth. Mostly I am thoroughly captivated by the leader. He’s a magical man who might have been a preacher in another life so I listen when mid lesson he stops and exclaims, “You don’t sing to make pretty music, you sing to feel the music. You sing to express your joy and sorrow. You sing as a release valve. You sing with your whole body.” 

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Ready to Take on the World: How Dani's Fierce Passion For Self-Expression Has Led Her to Her Best Self, a Confident 24-Year-Old Queen Fighting Lyme Disease

I'm a 24-year-old queen with a fierce passion for glamour, fashion, and music.

I also happen to be dealing with multiple chronic illnesses as a result of late-stage persistent Lyme disease. I've been in relapse for the past two years throughout which I've been trying to finish a doctoral program for physical therapy. During this time, I've fought to maintain the life I once had as well as my own identity. I've struggled through non-relationships where the other person didn't believe in my illness, called me dramatic, or just plain ran away from the gut-wrenching reality of what I go through on a daily basis. I've had lower lows than I ever could've imagined, breaking down my entire sense of self and having to build it back up entirely on my own.

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I Did It Anyway: Maddy's Story On Finding Her Adventure + Redefining What It Means to be Determined in Her Pursuit of Happiness + Fight Against Lyme Disease

I grew up with a love of the outdoors, playing in the ravine next to my house that ran down to Lake Michigan with my twin brother. I frolicked in my local neighborhood parks, rode bikes from dusk to dawn without a care in the world. I ran track and cross country and fell in love with graphic design, film photography and philosophy in high school. I also found a deep passion for music - something I’d realize later on is one of the few things Lyme cannot take away from me as well as something that brings me peace, joy and hope.

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Down with the Silver Lining + Jonathan's Message to Lyme Disease: You've Overstayed Your Welcome, So Please Don't Make Yourself At Home

Call me callous, but I’m a bit too cynical for the ‘silver lining’ Lyme disease and chronic illness stories. Whenever I encounter them I can’t help but daydream about the speed and alacrity with which I would trade in my personal ‘silver lining’ for a cloudless sky at some imaginary Chronic Illness Unemployment Office (“Yes, I gave it the old college try, but Lyme just wasn’t for me, you understand of course?”) If you have no idea what I’m talking about, just bear with me, it will become more relatable shortly... 

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I Thought It Was Impossible, Yet Here I Am: Hannah Lyal Bingham's Thoughts On Lyme Disease + Living Life To It's Fullest

Hi folks, my name is Hannah and I am here to share MY story.

It all started about two and a half years ago. I became very sick very fast. I was passing blood clots, violently vomiting, my body ached so badly that I would lie in fetal position and not move for hours. I dropped 40 pounds in 3 weeks, and was so depressed to the point where I was suicidal. I truly thought that I was dying. I was sure of it, and the doctors weren't determined to figure out was wrong so they left me with "it might be colon cancer" and that was that. I moved to Alaska without knowing what was wrong with me. Alaska was the happiest I had been in a long time and at first I didn't feel all that shitty, but three months in I had to move back home because my symptoms had come back stronger than ever.

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