Posts tagged Lyme Story Told
A Brain On Fire: Losing Everything to an Invisible Illness & Working My Damned Hardest to Get it All Back

In this exhilarating, humbling and terrifying moment - all the thoughts and words that have been burning a hole in my soul, begging to be shared - will be.

And in all honesty, when faced with the daunting task of putting to pen and paper what the past 15 years of my life have been like, I've been overwhelmed. But after weeks of coddling these ideas and memories, I'm ready.

My greatest fear, was and is not doing justice to a story that has shaped my entire self. But I'm going to try, try and convey that what you see now is not without tragedy. And the persona I embody on social media is really the product of many years of struggle, losing everything to an invisible illness and working my damned hardest to get it all back...

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Things Underneath: The Unearthing Of Lyme Disease In a Body That Refuses To Give Up and a Mind That Is Determined To Change The Way The World Views The 'Things Underneath'

I remember the last time I felt healthy.

Just simply, effortlessly like Ari. 

I'm not sure if the memory is so vivid only now in retrospect because of what has been lost since or if it was in fact, as sweet as I remember it being. 

The sun rose on a beautiful mid-October Saturday in Bend Oregon, after a lovely night spent with out-of-town friends: The Reel Rock Film Tour followed by meaningful conversations about our futures over a few too many IPAs. It had only been a week since I had decided to forgo my beer-free sentence: I would conquer the stomachache and embrace the flavor and culture of beer in this well-versed town. I only wish now, that I had made that decision many weeks earlier. My friend Brooke and I mused over the somewhat uncanny similarities in our life trajectories over the last decade and I shared with her my internal battle about whether to dive headfirst into medical school or to pursue a Naturopathic doctorate instead

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Honoring Both the Storm + the Rainbow: How Rachel O'Malley's Adventurous Spirit Drives Her Overcome Setbacks

This Is, Rachel...

In a fight against her own body, Rachel has found a place of acceptance. A place where she can look at the obstacles, set backs, and pain that comes from living with this disease, as part of her journey. As part of what makes her the strong, resilient, adventurous, and brave human that she is today. That she always has been.

Rachel has learned what it's like to be ok with not being ok. To see all that she's done as every reason to not just live, but thrive. To show up and allow herself to be seen, even if that means feeling vulnerable or out of place. To take her past experiences and build off them, even lean into when things seem impossible. To use them as tools to help build a life for herself beyond the limitations of Lyme. 

This diseases pushes us to be brutally honest with ourselves, to face parts of ourself that we are scared to face. To be there, trusting, believing, and fighting for a life more than. For the life you deserve to live, even if it's slightly different from what you expected. 

This is Rachel's story...

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Larissa Vejarano: On Bravery and Standing Your Ground When Faced With The Uncertainty Of Lyme Disease

What do you do when you have quite literally, no where to turn? What do you do when you are faced with unbearable pain, loss, depression, anxiety, and absolutely no answers as to why? What do you do when the people closest to you don't believe you when you say something is wrong. Something really, really awful is going on inside of me?

Unfortunately, those are the questions that many of us face when we are either in the process of being diagnosed with, already suffering from, or have been fighting Lyme Disease for many years. There is no certainty, and for many, there is no solution. We can do everything right only to find that we should have done things differently. That the obstacles we face may never leave us part of an outcome we feel comfortable with. 

With that being said, I would like to introduce you to someone who has forged her own path in unfolding and discovering the importance of standing your ground when facing unanswered questions. When facing a disease that takes your life and turns it upside-down, and her name is Lari Vejarano.

Lari is a force to be reckoned with. She is a piece of hope where little is found, resilience amidst hardship, determination when facing obstacles, and laughter when all else fails; she is living a life more than in a country where, like many, Lyme is not given the recognition is deserves, but despite it all, Lari is rolling up her sleeves and pursuing treatments, doctors, and a life amidst the chaos that is this disease. 

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