Posts tagged Lyme Disease
It Couldn’t Be That Bad, Right? On Vulnerability, Invisible Turmoil, and Being a Voice for Others in the Face of Chronic Illness

Vulnerability is hard; in speaking with others, in writing about our experiences, and even more so publishing those musings online for all to see and dissect.

During college, I relished connecting with others and exchanging stories. I was frequently inspired by others’ struggles, dreams, and ambitions. I loved sharing my history and seeing how such different backgrounds could overlap with common hurdles that had been overcome.

Until one spring during my senior year, something went wrong. Parts of me were changing and I didn’t know why. These changes were so profound that I didn’t trust my mind, my emotions, or myself anymore. The person I once was, slowly started slipping away.

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Rise and Thrive: A Story of Lyme Disease, Dance, the Negative Side of the Word “Heal,” and Why Hannah Has Never Thought of Herself As Broken & Needing to Be Fixed

Sometimes a diagnosis can feel like a death sentence.

Whether your particular sentence is an injury, illness, or mental health condition, it can feel as though the walls are closing in. It’s as if there’s no escape and no way back to the life you once lived. At least this is how I felt when I was diagnosed with not just Lyme disease, but also heavy metal poisoning, mold toxicity, and a garden variety of parasites.

I was 32, with a three-year-old son, assorted jobs, and a life that simply didn’t accommodate chronic illness. I was devastated. I shook with fear, with disbelief, with denial. Now I refer to myself as the luckiest Lyme patient alive...

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Chronic Illness Reimagined as Something Glamorous: Through Color, Love + the Stories that Go Unheard, Rora Blue is Creating a Whole New Platform to Share Your Voice From

Why you should get to know Rora Blue 

When we think of sharing, our mind often jumps to the thing that we're most familiar with, whether that be words, video, public speaking - or something terrifying that we'd rather not do. So when we are witness to someone sharing in a way you've never seen before, it can take a moment to catch your breath. To realize the power that we have to create an entire platform that gives a voice to those stories that we'd rather not share.

And to step back and see that we too could take a piece of ourselves and share from that place too.

The uncomfortable, painful, raw, vulnerable, and all too real thoughts. So many times I've written something out then erased it, even if it was only for my eyes. So many times I've gone to say something to someone and backed out at the last minute - as if my heart and mind are both trying to win me over. 

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What It Means To Be Human: Healing Systemic Lyme, Yeast, and Parasites By Way Of Compassion, Adventure, and Endless Amounts Of Vigor, Love and Determination

What does it mean to be human? I’ve been trying to wrap my head around this question for months. To me, to be human is being able to experience truly intense emotions – fear, joy, love, frustration, anger, sadness, pain, excitement, and hope. I don’t know, but I think that the most able humans are defined by how they choose to experience change.

Here’s a little snap shot of what my life was, what it is, and what it will become.

It has nearly been one year… 12 months, 365 days… since I’ve spent 4% of my life healing from one hell of a disease. It doesn’t seem like too long. Maybe it’s not in the scheme of things. But for me, it feels like a lifetime.

My Lyme story starts out very different from most peoples’. I can recall the exact day I found a tiny round nymph burrowed into the back of my neck. In fact, I have pictures. 

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Larissa Vejarano: On Bravery and Standing Your Ground When Faced With The Uncertainty Of Lyme Disease

What do you do when you have quite literally, no where to turn? What do you do when you are faced with unbearable pain, loss, depression, anxiety, and absolutely no answers as to why? What do you do when the people closest to you don't believe you when you say something is wrong. Something really, really awful is going on inside of me?

Unfortunately, those are the questions that many of us face when we are either in the process of being diagnosed with, already suffering from, or have been fighting Lyme Disease for many years. There is no certainty, and for many, there is no solution. We can do everything right only to find that we should have done things differently. That the obstacles we face may never leave us part of an outcome we feel comfortable with. 

With that being said, I would like to introduce you to someone who has forged her own path in unfolding and discovering the importance of standing your ground when facing unanswered questions. When facing a disease that takes your life and turns it upside-down, and her name is Lari Vejarano.

Lari is a force to be reckoned with. She is a piece of hope where little is found, resilience amidst hardship, determination when facing obstacles, and laughter when all else fails; she is living a life more than in a country where, like many, Lyme is not given the recognition is deserves, but despite it all, Lari is rolling up her sleeves and pursuing treatments, doctors, and a life amidst the chaos that is this disease. 

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No Matter the Odds: Kaitlin Child's Choice To Live a Life More Than Lyme

Meet Kaitlin.

A determined, resilient, hard working, brave, courageous, and honest woman, who has taken the obstacles that this disease as placed in front of her, and turned them into every reason to live her life to the fullest. 

At thirteen years old, Kaitlin's life was packed full of hospital visits, unanswered questions, and a diagnoses that changed everything; Late Stage Lyme Disease was about the only answer she was given to her seemingly never ending list of questions, and it was an answer that would continue to haunt her for the years that followed, limiting her to a life that was so far from the one she wanted. A life that was scattered with fear, doubt, and an overwhelming sense that this thing, this thing was never going to go away.

This is her story...

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