I grew up with a love of the outdoors, playing in the ravine next to my house that ran down to Lake Michigan with my twin brother. I frolicked in my local neighborhood parks, rode bikes from dusk to dawn without a care in the world. I ran track and cross country and fell in love with graphic design, film photography and philosophy in high school. I also found a deep passion for music - something I’d realize later on is one of the few things Lyme cannot take away from me as well as something that brings me peace, joy and hope.Read More
What does it mean to be human? I’ve been trying to wrap my head around this question for months. To me, to be human is being able to experience truly intense emotions – fear, joy, love, frustration, anger, sadness, pain, excitement, and hope. I don’t know, but I think that the most able humans are defined by how they choose to experience change.
Here’s a little snap shot of what my life was, what it is, and what it will become.
It has nearly been one year… 12 months, 365 days… since I’ve spent 4% of my life healing from one hell of a disease. It doesn’t seem like too long. Maybe it’s not in the scheme of things. But for me, it feels like a lifetime.
My Lyme story starts out very different from most peoples’. I can recall the exact day I found a tiny round nymph burrowed into the back of my neck. In fact, I have pictures.Read More
October marks one year of being free, after sixteen years of intense, intense pain caused by Lyme disease.
I was diagnosed last May after so many years of trying to find answers, and I took a few months off to heal and help my body recover. Those month were extremely difficult, but I was able to find a few good doctors that helped me find a couple of treatments that truly changed my life. I still struggle with various symptoms: fatigue, muscle and join pain, brain fog, skin issues, etc., but those have been manageable and do not compare to the pain I felt in my back and abdomen.
Over the last few years, things were getting so bad that I had a hard time standing or walking for extended periods, and if I had to for certain reasons, I would sneak off to “use the bathroom,” but what I was really doing was throwing up from the overwhelming pain I was experiencing.
I tried so hard to push through it for years, but it started controlling my life in ways that I couldn’t enjoy the things I loved. But it was October of last year where I started noticing the change.Read More