A YOU DAY
1. On a day all to yourself--what is your favorite way to wake up? (Coffee/tea in bed, a walk, yoga etc)
2. What are your favorite snacks/food items to bring along on a solo adventure? Or do you stop at a favorite place before to pick up a smoothie or lunch to go?
3. What kind of places intrigue you/motivate you--that inspire you to adventure. Somewhere you'd want to hang out at for an afternoon. (Maybe pick a places or a couple places around your home that you love to explore or just visit frequently.)
4. Lastly, on this day--are you constantly aware of your Lyme (and all that goes along with it) Does it find a way to creep into your day--make you feel or think differently? If so how best do you overcome that feeling and push through?
Side Note: One of my favorite things about featuring people is being able to see the way in which they write. I am able to tell so much from a person from their voice, even if I am not able to talk to them face-to-face--their personality shines through the text. All that being said, I never want to mold that voice into a format that "works" best for me. So, I thought that it would only be right to leave Hailey's version of 'A You Day' as is. That way, the reader is better able to hear the true voice behind this inspiring young woman.
Hello! My name is Hailey,
I am twenty years old, and in June of 2014 I was diagnosed with Chronic Late Stage Lyme Disease along with five other co-infections. Like many others struggling with this disease, it took me many years (six to be exact) to find out what was ailing me. Although many of my symptoms limited me in middle and high school, it wasn't until I started treatment that I reached my roughest patch yet.
It seemed as if my life had changed nearly over night; I spent most of my days in bed with crippling fatigue, migraines, GI troubles, and wide spread joint pain. Because of my worsening condition, I had to make the crushing decision (more like the decision was made for me by doctors) to remain at home to receive treatment instead of returning to school out east.
"It was my life -
like all lives,
mysterious, irrevocable, and sacred.
So very close, so very present,
so very belonging to me.
How wild it was, to let it be."
- Cheryl Strayed, Wild
These past ten months have been a bit of a blur to me. Many days spent fighting to simply hold on and heal to the best of my ability. It is truly an unfathomable thought for me that it has almost been a year since I started on my treatment journey. With my "anniversary" coming up in a few months, I have been thinking a lot about how I can live a more meaningful life while battling this illness. What does a meaningful life mean to me? It means making a difference, helping others, helping myself, and laughing...a lot! It is hard to balance life when you're struggling to hold on to the slightest shred of normalcy.
However, I believe with focus and a full heart that it is possible to truly LIVE while fighting for your health at the same time. One way I have done this is by traveling when I can. Over the past few months I have been able to visit many family members and friends, which has been wonderfully therapeutic. While these are all places that I have traveled to before, there is always something exciting about getting on a plane and tackling a new adventure. An adventure to many people may mean something extravagant, but to me, as of lately, adventure simply means breaking out of my normal routine. It means working through the anxiety of the unknown and letting myself feel like me again.
Adventures are what make life exciting and meaningful. The best part about adventure is that each and every one of us can create our own definition of the word. During these adventures of mine I find myself feeling whole, happy, and motivated. Motivated to fight harder than I ever have. Motivated to continue to share my story, extend a helping hand, and lend an empathetic ear. Adventures help me live a life full of meaning, compassion, and wonder. They help me to continually realize that I am #MoreThanLyme.
Continue to follow Hailey's story as she takes each day as is--making each moment into her own adventure: