‘You don’t get out of this world without getting your ticket punched’ my Nana often reminds me. A life-altering moment that will pick you up like a hurricane and drop you off miles from where you began. Inevitably, we will all get our turn at facing the darkness. Our world will be shaken, our beliefs questioned, and our hearts strengthened. After years of unknown and then the diagnosis of Lyme disease, it seemed as if I got my share of ticket punches.Read More
You know that feeling that when you leave a place behind, it takes a part of you with it? Or rather, you leave a part of yourself behind. Well, I'm beginning to think that that piece is something you bring with you, that you are taking with you, in your very core, the many things that place showed you.
You are taking with you the way that place made you feel, and that in itself is more than enough to keep it's echo ever-present.
No matter how lost I felt, or what stage I was at in my life, Tuckaway, and everyone that inhabited it, had a way of bringing me back home. You know, the kind of home that is always with you. The kind of home that can often go missing, feel distant, or disappear for a awhileRead More
I used to think that in order to see new things, experience new places, and meet new people, I had to travel abroad. I had to save, work, save some more, and buy a plane ticket to a place thousands and thousands of miles from my home, and though my yearning for ten hour plane rides is still a very, very real thing, there has been a shift in the way I view adventure.
All of those things that I mentioned above, they surround you. They are right there, waiting for the moment you step foot outside your front door.
I had my pills counted and put in their proper containers, snacks in the front seat, bags packed and puzzled together in the back (honestly, Adam did the majority of this), gas tank filled, and coffee placed in the center console.
It was time for an adventure, and my gosh I couldn't wait to get going!Read More
Normally this kind of post would be in a Real Talk , but because this topic feels more like I'm embarking on some kind of adventure, my gut told me to go with it. So go with it is what I shall do!
How Sick Are You, Really?
Most of the time, I am able to put one foot in front of the other in order to reach my destination.
Most of the time, I am able to take my fingers, place them on the keyboard, and write until the hippo dog needs feeding.
Most of the time, I am able to roll out of bed, walk to the kitchen, make myself some coffee, curl up on the couch, and attempt to tackle whatever tasks I have planned for the day.
Most of the time, I am able to gulp down ten pills day (give or take), tell myself I am beautiful, smile to myself in the mirror, and embrace the day ahead.Read More
Hello everyone! My name is Aly Shwedo and I was recently welcomed to the More Than Lyme team by my close friend, Chloe! Every few months, I travel cross country to the Seattle area for Lyme treatment. Here are a few pieces of writings that I've compiled from my most recent trip that I was able to scribble down in between the chaos of appointments, IVs, one surgery, detox treatments, and more that encompass the roller coaster that is two weeks of nonstop Lyme treatment.
January 16, 2016. 11:04 am. Somewhere above the United States.
Waking up at 3:30am, leaving the house by 4, picking up a wheelchair from airport check-in, waiting in TSA security checkpoint lines, and sitting in a plane for six hours doesn't feel like my ideal way to spend a Saturday morning. I've had a lot of anxiety building up to this round of treatment. I'm also terrified of heights, but for some reason, today (after a debate with my boyfriend) I had to have the window seat. As soon as the plane was above the clouds, I was in awe. How could I be scared when I got to watch the sunrise from 10,000 feet above the earth? How could I be scared when I saw streetlights and cars in the darkness below, like Christmas lights that someone forgot to take down? How could I be scared when I saw the clouds kissing the air below me? And how could I be scared of the future of my treatment when I'm surrounded by such beauty on the way to the clinic?Read More
With every step I broke another layer of night, bringing with me the pink and purple hues of the day to come.
That familiar feeling began to once again bubble up inside of me. Just as familiar as it was terrifying, so I did the only thing I knew how to do: push my feelings aside, clear my head, and find a way to distract myself from the reality of my jumbled brain. This distraction took the form of a twig, as I was immediately captivated by the snow covered twists of near perfection, wondering how in the world something so complex could make life seem so simple.Read More